Collaboration is the path to discovering effective treatments

In 2017, Jenni Kovach was diagnosed with EHE, a very rare kind of cancer. She underwent a liver transplant in 2018 and is currently the President of The EHE Foundation.

Today, Jenni and a team of compassionate and highly motivated individuals aim to ​build on prior research efforts and jumpstart an effective patient-focused, collaborative research network program geared toward discovering effective treatments for EHE patients worldwide. “Curing cancer is a huge goal but we feel like it is attainable by creating a strong foundation to bring great minds together and fund critical research,” says Jenni.

EHE is a vascular sarcoma and can affect people of all ages but mostly young adults. Many patients remain without a diagnosis or are misdiagnosed, which is why it is so important to consult with a comprehensive cancer center with sarcoma and pathology experts. EHE occurs in a variety of anatomic sites, including the soft tissues, bones, and visceral organs. Currently, there is no reliable treatment and no known cure.

The EHE Foundation is excited to be a part of the Rare As One Network as it gives the organization the opportunity to finally make a significant footprint in the rare disease landscape. It hopes to greatly raise awareness of EHE, attract the right researchers to study the disease, and mobilize the patient community toward treatments and a cure.

Research Progress & Capacity Building Updates

The EHE Foundation has made significant forward progress by: