Jun 9, 2019 · 1 min read

#RareAsOne: 7,000 Rare Diseases, 1 Fight


Emily Kramer-Golinkoff, Dr. David Fajgenbaum, Dr. Maria Kefalas and her daughter Cal, Nasha Fitter and her daughter Amara, Onno Faber, and Tracy Dixon-Salazar and her daughter Savannah all have one thing in common: rare disease. Their journeys may be different, but their fight to find a cure connects them.

We’re going to have a front row seat to the biggest medical breakthrough in a generation.

Dr. Maria Kefalas

Meet these fearless rare disease patients and their families and learn more about their efforts to drive forward progress against rare disease.