RAO Partner

Rare As One Partner

EURORDIS 2020 Rare Disease Day policy event at the European Parliament. Photo provided by EURORDIS.
EURORDIS 2020 Rare Disease Day policy event at the European Parliament. Photo provided by EURORDIS.

EURORDIS-Rare Diseases Europe

EURORDIS-Rare Diseases Europe is a non-profit alliance of over 900 rare disease patient organizations from 72 countries that work together to improve the lives of the 30 million people living with a rare disease in Europe. By connecting patients, families and patient groups, as well as by bringing together all stakeholders and mobilizing the rare disease community, EURORDIS strengthens the patient voice and shapes research, policies, and patient services.

The Chan Zuckerberg Initiative’s support for EURORDIS will fund the development of two enhanced Rare Disease Day campaigns in 2021 and 2022 to continue to build, strengthen, and unify a movement to raise awareness of rare diseases across the globe.

Rare Disease Day is the global patient-led campaign to raise awareness for people living with a rare disease and their families. It is a grassroots platform to advocate for change to improve the lives of the 300 million people around the world living with one of over 6,000 rare diseases. The success of Rare Disease Day would not be possible without the outstanding efforts of the 60 official partners around the world. Together with their local rare disease patient communities, these national alliances of rare disease patient organizations drive Rare Disease Day at the national and local level. 

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Science Funding

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Hear Rare Disease Stories

Hear Rare Disease Stories

Listen to The Story Collider podcast featuring stories about patients who are driving progress against rare disease.