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National Organization for Rare Disorders

The National Organization for Rare Disorders (NORD) is the leading independent advocacy organization representing all patients and families affected by rare diseases in the United States. NORD is committed to the identification, treatment and cure of more than 7,000 rare diseases, of which approximately 90% are still without an FDA-approved treatment or therapy. 

The Chan Zuckerberg Intiative’s support for NORD will help the organization directly support patient advocacy organizations to develop their capacity to engage in research and build communities of rare disease patients, researchers, and clinicians working together to advance progress against their diseases. 

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Science Funding

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Hear Rare Disease Stories

Hear Rare Disease Stories

Listen to The Story Collider podcast featuring stories about patients who are driving progress against rare disease.