Rare As One Partner
Mikk and Helene Cederroth lost their three youngest children, Wilhelm (16 years), Hugo (10 years) and Emma (6 years), to a degenerative undiagnosed disease. They founded the Wilhelm Foundation to try to prevent this from happening to other families. The Wilhelm Foundation’s mission is that children and adults with undiagnosed diseases get a diagnosis as fast as possible wherever they live in the world. Undiagnosed diseases are often called “unsolvable.” To solve the “unsolvable,” a broad collaboration is needed all over the world.
The Wilhelm Foundation focuses on international collaboration to solve the undiagnosed disease odyssey. So far, the Foundation has hosted nine International Conferences on Rare and Undiagnosed Diseases. With support from CZI, the Wilhelm Foundation is working with families with undiagnosed diseases and their medical care providers from all over the world, particularly those in under-resourced countries.
Rare Genomes Project