Rare As One Project
Rare disease is anything but rare. As many as 7,000 rare diseases affect 400 million people globally. The vast majority are not well understood, and approved treatments have been developed for less than 5% of them. Yet worldwide, patients are meeting these challenges head on. The Rare As One Project is committed to uniting these communities in their quest for cures.
Movement for Science
Public support is foundational to advancing biomedical science. CZI’s Movement for Science program works to build broad belief in science so that support for science is a commonly held value, and so that CZI’s efforts to cure, manage, or prevent all disease can be effectively scaled. We envision a world where people understand the importance of science to their daily lives, where leaders apply scientific evidence to solve problems, and scientists view public engagement as central to their work.
Request for Applications
Rare as One
Rare As One (Cycle 2)
This RFA supports patient-led nonprofit organizations as they launch collaborative research networks in partnership with clinicians and researchers to accelerate progress against rare diseases.
- Cycle 1 - $13.5 Million
- Cycle 2 - $13 Million
Science in Society Team
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