The Stiff Person Syndrome Research Foundation
Stiff Person Syndrome (SPS) is a rare neurological disease with autoimmune features characterized by progressive, debilitating muscle stiffness and rigidity, episodes of painful muscle spasms, and often co-occurs with anxiety. The severity of SPS varies from person to person, can limit mobility severely, as well as interfere with daily tasks.
Founder Tara Zier’s motivation for creating this organization was two fold: first, the need to educate the world about SPS. Second, to show her kids that in life, no matter what hand we are dealt, we can still thrive, be happy, and make a difference in the world.
As part of the Rare As One Network, The SPSRF aims to raise awareness and funds for better treatments and a cure for Stiff Person Syndrome, as well as move towards organizational sustainability.
