Rare As One Partner

EURORDIS-Rare Diseases Europe

EURORDIS-Rare Diseases Europe is a non-profit alliance of more than 900 rare disease patient organizations from 72 countries that work together to improve the lives of the 30 million people living with rare diseases in Europe. By connecting patients, families and patient groups—as well as by bringing together all stakeholders and mobilizing the rare disease community—EURORDIS strengthens the patient voice and shapes research, policies, and patient services.

The Chan Zuckerberg Initiative’s support for EURORDIS will fund the development of two enhanced Rare Disease Day campaigns in 2021 and 2022. The goal of this work is to continue to build, strengthen, and unify a movement to raise awareness of rare diseases across the globe.

Rare Disease Day is the global patient-led campaign to raise awareness for people affected by rare disease, namely patients and their families. It is a grassroots platform to advocate for change to improve the lives of the 400 million people around the world living with one of more than 7,000 rare diseases. Rare Disease Day would not be possible without the outstanding efforts of the 60 official partners around the world. Together with local rare disease patient communities, these partner organizations drive the success of Rare Disease Day at the national and local levels.